Sick Girl Speaks & Friends

Sick Girl Speaks approaches her work from the perspective of a life-long cystic fibrosis and 2-time double lung transplant patient and a professional patient advocate. In April of 2020, Sick Girl Speaks went into acute kidney failure and she is currently on dialyis awaiting a donor kidney. 

When she's not talking with her Friends, Sick Girl Speaks is a nationally recognized public speaker and Vice President for Experience Excellence at The Beryl Institute. Sick Girl Speaks has served as a patient advocate at Duke Hospital working primarily in the area of Oncology. She also worked as the Program Coordinator for Duke Medicine’s Patient Advisory Council Expansion Program. After leaving Duke, Sick Girl Speaks became a Patient and Family Engagement Specialist at the North Carolina Hospital Association focusing on advancing the role of the Patient and Family Advisor (PFA) and Experience Based Co-Design.

Today, at the age of 48, Sick Girl Speaks has found love and a career that reaches beyond what she ever imagined for herself. Along with the life she has created are the challenges her physical body presents. Like anyone else, there are days when she is successful at being "bigger than her body" and others...well, that's what naps are for. 

 Sick Girl Speaks & Friends:

A Podcast About Love, Careers & Chronic Conditions

COMING IN EARLY 2022

Join us on any podcast platform for a weekly conversation with Sick Girl Speaks and one of her Friends as they bring the topics people only talk about late at night (usually with wine) into the broad, bright light of day.