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2010 Events:
December 16, 2010
Duke Lung Transplant Support Group
Duke Center for Living, Durham, NC
June 18, 2010
Hope for Breath Foundation Fundraiser
Long Island, New York
May 20, 2010
SAS Work/Life Program
SAS Campus, Cary, NC
May 13, 2010
Primary Children's Medical Center
Salt Lake City, Utah
May 7, 2010
Project Compassion Spring Symposium
North Carolina Venue TBA
May 6, 2010
Rex Hospital Nurse Excellence Conference
Raleigh, NC
May 5, 2010
Wake Forrest Nurse Appreciation Day
Winston-Salem, NC
April 30, 2010
NC AWHONN Conference
Gaston Memorial Hospital, NC
April 24, 2010
Dell Children's Medical Center of Central Texas
Austin, TX
April 17, 2010
Fourth Annual Midwest CF Nutrition and
Social Work Consortium
Indianapolis, IN
April 12, 2010
Hospice of Scotland County Appreciation Banquet
Laurinburg, NC
2009 EVENTS:
October 23, 2009
Mountain Air Respiratory Therapy Conference
Asheville, NC
October 22, 2009
Fearrington Cares
Fearrington Village, NC
October 16, 2009
Alzheimer's Services of Marshall County
Albertville, AL
October 15, 2009
Alzheimer's Services of Marshall County
Albertville, AL
October 8, 2009
Duke Lung Transplant Support Group
Durham, NC
October 8, 2oo9
Duke Medical School
Durham, NC
October 7, 2009
UNC Lung Transplant Support Group
Chapel Hill, NC
October 3, 2009
Watts Street Baptist Church
Durham, NC
September 28, 2009
Cabarrus College of Health Sciences
Concord, NC
September 25, 2009
National Hospice and Palliative Care
Organization Clinical Conference
Denver, CO
September 23, 2009
CSHCI Professional Patient Advocate Conference
Myrtle Beach, SC
September 12, 2009
UNC Chapel Hill CF Education Day
Chapel Hill, NC
September 10, 2009
UNCW School of Nursing
Wilmington, NC
September 3, 2009
End-of-Life Nursing Education Consortium
Duke Hospice, Durham NC
September 2, 2009
Duke School of Nursing
Durham, NC
August 31, 2009
Cardinal Chapter of the Emergency Nurses Association
Raleigh, NC
August 26, 2009
Pediatric Grand Rounds
Mission Hospital, Asheville NC
August 24, 2009
Alamance Community College Nursing School
Graham, NC
August 19, 2009
Pulmonary Resident Grand Rounds
University of New Mexico, Albuquerque
August 18, 2009
Adult CF patient Education Night
University of New Mexico, Albuquerque
July 14, 21 and 29 from 10:00-12:00
River Landings Retirement Community
Colfax, NC
June 11, 2009 9:00-3:00
Caregiver Conference
Mid-Carolina Area Agency on Aging
Kiwanis-Honeycutt Recreation Center
Fayetteville, NC
July 9, 2009
Duke Lung Transplant Support Group
Duke Center for Living, Durham NC
June 17, 2009
UNC School of Nursing
Chapel Hill, NC
June 16, 2009
UNC School of Nursing
Chapel Hill, NC
June 13, 20, 27
Online workshop only for
CF Patients, Families and Friends
United States and Canada
Free for those living in North Carolina
June 12, 2009
Alamance Community College Nursing School
Graham, NC
June 5, 2009
A Day of Symptom Management:
Clinical Pearls for Those Caring for Patients
with Chronic Disease
HPNA Triad NC Chapter and Greensboro
AHEC at Moses Cone Hospital, Greensboro, NC
May 5, 2009
Guild Nurses Recognition Day
Rex Hospital, Raleigh NC
May 1, 2009
Hope for Breath Fundraiser
Long Island, New York
April 22, 2009
Chaplain Student Conference
Atlantic Beach, NC
April 18, 2009
LAM Foundation National Conference
Cincinnati, OH
April 17, 2009
LAM Foundation National Conference
Cincinnati, OH
April 8, 2009
UNC Lung Transplant Patient Support
Chapel Hill, NC
April 4, 2009 9:00am-3:00pm
Durham Center for Senior Life
Hosted by Council for Senior Citizens
April 1, 2009
S.A.S. Software Corporation
Cary, NC
March 25, 2009
S.A.S. Software Corporation
Cary, NC
March 21, 2009 9:00 - 2:00
Lower Cape Fear Hospice & LifeCare Center
"In Sickness and in Health" Community Conference
UNC Wilmington School of Education
March 13, 20 and 27 9:00 - 12:00
Glenaire Retirement Community
Multipurpose Room, Cary, NC
March 11, 2009 10:00-12:00
UNC Capstone Series
Graduating Medical Students
Old Clinic Auditorium, Chapel Hill NC
March 9, 2009
UNC Pediatic Pulmonary Team
Chapel Hill, NC
March 3, 2009 4:00-5:00pm
ELNEC Conference
Duke Hospice
February 28, 2009 3:00-5:00pm
DSI Comedy Theater
Carrboro, NC
February 19, 2009 8:30-11:00am
Duke Divinity School
Durham, NC
February 3, 2009 9am
UNC School of Nursing
Chapel Hill, NC
January 27, 2009 5:00pm
UNC School of Social Work
Chapel Hill, NC
January 22, 2009 8:30-10:30am
WakeMed, Andrews Conference Center
Raleigh, NC
2008 EVENTS:
December 12, 2008 12:30pm-1:45pm
Nurse Leader's Association
Durham Regional Hospital
December 16, 2008 7:00pm-9:00pm
Carrboro Century Center
Carrboro, NC
December 9, 2008 7:00pm-9:00pm
Carrboro Century Center
Carrboro, NC
December 6, 2008
"Miracle Mission"
CF Foundation Fundraiser, Chicago IL
December 4, 2008
Sweet Melissa Fund
Carolina Inn, Chapel Hill NC
December 2, 2008 7:00pm-9:00pm
Carrboro Century Center
Carrboro, NC
December 1, 2008 4:00pm-5:00pm
Duke End of Life Conference
November 25, 2008, 1pm-3pm
The Cedars of Chapel Hill
November 22, 2008
CF Education Day
November 21, 2008
University of Kentucky Medical School
Lexington, KY
November 20, 2008 9:00am-12:00pm
John's Hopkins Hospital Grand Rounds
Baltimore, MD
November 18, 2008 5:30pm
Caregiver's Appreciation Dinner
Durham Center for Senior Life
Durham, NC
November 18, 2008, 1pm-3pm
The Cedars of Chapel Hill
November 14, 2008
Pediatric Neonatal Update Conference
Greenville Children's Hospital, NC
November 11, 2008, 1pm-3pm
The Cedars of Chapel Hill
November 7, 2008 8:30-10am
Duke Home Care and Hospice Grand Rounds
Durham, NC
this presentation will be filmed
all attending must sign a media release
November 4, 2008, 1pm-3pm
The Cedars of Chapel Hill
October 29, 2008 12:30pm-4:30pm
Carolina Meadows, Chapel Hill NC
this presentation will be filmed
all attending must sign a media release
October 28, 2008 10:00am-12:00pm
Duke School of Nursing
this presentation will be filmed
all attending must sign a media release
October 27, 2008 12:00-1:00
UNC School of Social Work
Chapel Hill, NC
October 24, 2008, 12:30pm-1:15pm
UNC Nursing End of Life Conference
Friday Center, Chapel Hill NC
October 23, 2008 12:30pm-2:00pm
Women Heart Group
Carrboro, NC
October 20, 2008 9:00-Noon
Carolina Meadows, Chapel Hill NC
October 17, 2008, 2pm-3pm
The Cedars of Chapel Hill
October 15, 2008, 7pm-8:30pm
First Methodist Church
Cary, NC
October 13, 2008, 9am-12pm
Carolina Meadows, Chapel Hill NC
October 7, 2008
Duke Medical School
Durham, NC
October 6, 2008, 9am-12pm
Carolina Meadows, Chapel Hill NC
October 2, 2008
Project Compassion Fundraiser
Carolina Club, Chapel Hill, NC
September 29, 2008
Duke School of Nursing
Durham, NC
September 28, 2008, 2pm-5pm
North Carolina Transplant Foundation
Duke Gardens, Durham NC
September 24, 2008, 1pm-4pm
Sunrise Senior Services
Millbrook United Methodist, Raleigh NC
September 19, 2008, 6pm
Carolina Donor Services Banquet
September 17, 2008, 1pm-4pm
Sunrise Senior Services
Millbrook United Methodist, Raleigh NC
September 12, 2008, 8am-4:30pm
Canceled
The Cedars Retirement Community
Chapel Hill, NC
September 10, 2008, 1pm-4pm
Sunrise Senior Services
Millbrook United Methodist, Raleigh NC
September 8, 2008, 4pm-5pm
Duke End of Life/Palliative Care
Regional Conference
September 6, 2008, 9am-2pm
Project Compassion
Seymour Center, Chapel Hill NC
September 5, 2008, 8am-4:30pm-
Canceled
The Cedars Retirement Community
Chapel Hill, NC
September 4, 2008, 7pm
Regional Nurse Executive Conference
Marriott, Raleigh NC
August 28, 2008, 3:00pm
Carolina Meadows (Fairways)
August 21, 2008--Canceled!
To be rescheduled
SECU Family House
Chapel Hill, NC
August 19, 2008, 4:00pm
Sunrise Senior Care of Raleigh
In-Staff Wine and Cheese
August 13, 2008
Duke Medical School
August 12, 2008
The Forrest at Duke
August 4-8
CFRI Adult CF Retreat
Redwood City, CA
August 1, 2008
CFRI National Conference
Redwood City, CA
July 29, 2008
Duke Medical School
July 24, 2008
Duke Palliative Care Conference
Duke Hospital South, Durham NC
July 22, 2008
Carolina Meadows (Lecture Hall)
Chapel Hill, NC
July 11 & 12, 2008
Transplant Olympic Games
Pittsburgh, PA
July 10, 2o08
Family Hospice and Palliative Care
Pittsburgh, PA
June 29, 2008
Carolina Meadows (Auditorium)
June 21, 2008
Starlight Starbright Foundation
June 11, 2008
UNC Lung Transplant Support Group
June 5, 2008
The Cedars of Chapel Hill
June 3, 2008
Duke University Medical School
June 3, 2008
UNC Nursing School
Spring, 2008
Cornucopia House Day Workshop Series
May 31, 2008
Mount Vernon Baptist Church Health Fair
Durham, NC
May 23,2008
Glenaire in Cary, NC
9am- noon
May 16,2008
Glenaire in Cary, NC
9am- noon
May 9,2008
Glenaire in Cary, NC
9am- noon
May 3, 2008
UNC Cardiothorasic Transplant Picnic
May 1, 2008
UNC Nursing and Psychology School
Dr. Theresa Raphael-Grimm
April 24, 2008
Legal Aide Conference
Raleigh, NC
April 28-30, 2008
La Crosse, WI
April 18, 2008
UNC 8th Annual End of Life Care Conference
April 15, 2008
Carolinas Center for Hospice and
End of Life Care Clinical Conference
Plenary Speaker
April 17, 2008
Carolina Meadows in Chapel Hill, NC
9:00 until noon
April 10, 2008
Carolina Meadows in Chapel Hill, NC
9:00 until noon
April 3, 2008
Carolina Meadows in Chapel Hill, NC
9:00 until noon
April 3, 2008
Spiritual Frontiers Fellowship, Raleigh NC
7:15-9:30 pm
April 7-9, 2008
Southeastern Regional Parish
Nurse Coordinator Retreat
April5-May3 2008
Duke Continuing Studies Workshop Leader
March 18th
UNC Nursing School
March 7, 2008
Project Compassion Spring Symposium
March 6, 2008
Duke Medical Center "Transplant Lab"
March 4, 2008
Cornucopia House workshop
March 3, 2008
Vance-Granville Community College
Feb. 27, 2008
Optimist Club of Chapel Hill
Feb. 26, 2008
Market Street Books
Feb. 17, 2008
Book Launch Party!!
Feb. 13, 2008
Duke Divinity School
2007 EVENTS:
Dec. 19, 2007 Nurse Leader's Meeting, keynote speaker Title TBA
Nov. 17, 2007 Evening of Miracles Book Signing
Nov. 4, 2007 Co-Creator, Speaker: Community Pet Memorial Service "Pets as Witness"
Oct. 23, 2007 Guest Speaker for UNC Chaplain Residents " Loving Through Illness,
A Patient Perspective on How
Illness Impacts Relationships"
Oct. 22, 2007 Guest Speaker for UNC Chaplain Residents "From Diagnosis to Acceptance,
A Patient's Emotional
and Spiritual Journey"
Sept. 29, 2207 Project Compassion's Seeking Relief from Pain "Alternative Medicine and
Patient Advocacy"
Sept. 28, 2007 UNC Chapel Hill Psychiatry Grand Rounds "The Art of Good Grieving"
June 6, 2007 Duke University Medical School Panel "Healing vs. Curing"
May 24, 2007 UNC Psychiatry Residents In-Service "The Difficult Patient"
April 28, 2007 Project Compassion's Spring Symposium "PhD in Patientology"
Jan. 24, 2007 UNC Medical School talk for internal medicine residents "Practice: A Patient Perspective
on Being a Good Physician"
Dec. 4, 2006 UNC Medical School talk for alternative medicine class "The Compassionate Bedside:
A Patient Perspective"
Oct. 18, 2006 Community Home Care and Hospice "Hospice Caregivers
as Death Walker"
Sept. 26, 2006 Project Compassion's Pain Forum with Dr. Richard Payne "The 4 E's of Pain Management"
Various and Many
dates in 2006 Carolina Donor Services outreach to high school students "Organ Donation Saved My Life"
May 24, 2006 Duke University's OLLI Continuing Education "Patient Advocacy 101"
May 10, 2006 Bridges to Healing Series at UNC Hospital "Expanding Your Compassion;
Stories from an Illness Ambassador"
April 10, 2006 UNC Hospice Staff In-Service "Expanding Your Compassion;
Stories from an Illness Ambassador"
Jan. 25, 2006 UNC Hospital Lung Transplant Support Group "Making the Waiting Count"
| Upcoming and Past Events |
Event / Date Title of talk, workshop or reason for participation
| Sick Girl Speaks! |
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"Patient to Patient: The Gift of Advance Care Planning"
"Breathing with Gratitude"
"Finding Your Voice in the Healthcare Maze"
"Growing Up Dying: Shifting the Pediatric Patient Paradigm"
"Growing Up with Illness: Partnering with Pediatric Patients"
"Caring for You, Caring for Me: A Nurse Improv!"
"Caring for You, Caring for Me: A Nurse Improv!"
"Partnering with the Difficult Patient"
"Living and Thriving with CF"
"A Bed's Eye View: The Patient Perspective on Lung Transplant"
"Life in the Deathbed: Honoring Those Who Step Forward"
"A Recipient Perspective on Lung Transplant"
"Finding Your Voice in the Healthcare Maze"
Professional Advocacy Presentation, Title TBA
Patient and Family Advocacy Presentation, Title TBA
"Patient to Patient Advance Care Planning"
"Finding Your Voice as a Caring Professional"
"Patient to Patient: The Gift of Advance Care Planning"
"Finding Your Voice in the Healthcare Maze"
"Finding Your Voice as a Caring Professional"
"Growing Up Dying: Shifting the Pediatric Patient Paradigm"
"Being Patient: Pulling Back the Curtain"
"Living and Thriving with CF"
"Finding Your Voice as a Caring Professional"
"Life in the Deathbed"
"Finding Your Voice as a Caring Professional"
"Chronic Emergency: The ED Through the Eyes of a Life Long Patient"
"Growing Up Dying: Sick Girl Speaks"
"Finding Your Voice as a Caring Professional"
"Life in the Deathbed; A Patient Perspective"
"Living and Thriving with CF"
"Finding Your Voice in the Healthcare Maze"
"Finding Your Voice in the Healthcare Maze"
"Patient to Patient: The Gift of Advance Care Planning"
"Finding Your Voice as a Caring Professional"
"Finding Your Voice as a Caring Professional"
"Finding Your Voice in the Healthcare Maze"
"Finding Your Voice as a Caring Professional"
"Sick Girl Speaks: Shifting the Patient Paradigm"
"Caring for You, Caring for Me" a patient/nurse improv!
Keynote: Title TBA
"Finding Your Voice as a Caring Professional"
Break Out Session, "The Opportunities of Illness"
Keynote Address, Title TBA
"Patient to Patient: Why Advance Care Planning is a Gift"
"Finding Your Voice: Navigating the Healthcare Maze"
"Sick Girl Speaks!"
"Finding Your Voice" Mini-Session
"Finding My Voice" Keynote Presentation
"Finding Your Voice" Break Out Session
"Finding Your Voice" Parts One, Two and Three
"Finding Your Voice as a Caring Professional"
"Finding Your Voice" Professional In-Service
"Life in the Deathbed"
Filming of "Finding Your Voice" Audience Members Needed!
"Finding Your Voice as a Caring Professional"
"Finding Your Voice as a Caring Professional"
"Finding Your Voice as a Caring Professional"
"Life in the Deathbed"
"See What You Made Me Do?"
A Patient and Nurse Improvisation
"Finding Your Voice" Part III
"Finding Your Voice" Part II
Keynote: "The Legacy of Today"
Keynote: "Grateful for Every Day"
"Finding Your Voice" Part I
"Life in the Deathbed"
"Finding Your Voice" Communication with Medical Professionals
"Living and Thriving with CF"
"Defining Good Medicine; Humanizing Healthcare"
"Life in the Deathbed" with professional/patient improv!
"Finding Your Voice"
"Finding Your Voice" Communication with Loved Ones Part II
Plenary Speaker: "Life in the Deathbed"
with a focus on children facing terminal illness
"Finding Your Voice" Communication with Loved Ones Part I
"Life in the Deathbed"
"Finding Your Voice" Brass Tacks
"Finding Your Voice as a Patient Advocate"
"Finding Your Voice as a Caring Professional" and Book Signing
"Finding Your Voice as a Caring Professional"
"Life in the Deathbed"
"Finding Your Voice" Mini-Session
"Finding Your Voice" Communicating with Medical Professionals
Patient Advocacy Program and Book Signing
"Finding Your Voice" mini-workshop
"Finding Your Voice" Difficult Conversations with Loved Ones
"Defining Good Medicine; Communicating with Patients"
taught beside Dr. James Tulsky
"Finding Your Voice" Brass Tacks
"An Evening with Compassion"
"Finding Your Voice as a Caring Professional"
"Walk and Rock!" Transplant Speaker
"Finding Your Voice" Communicating with Medical Professionals
Keynote Speaker: "Grateful for Every Day"
"Finding Your Voice" Difficult Conversations with Loved Ones
Respecting Choices Advance Care Planning Facilitator Training Part II
"Finding Your Voice" Brass Tacks
"Life in the Death Bed" Part II (A more in-depth look)
"Being Alone by Choice or by Chance; Crafting a Meaningful Life"
Respecting Choices Advance Care Planning Facilitator Training Part I
"Battle of the Medical Mindsets: Doctor and Patient Get Real" with Dr. Tony
Galanos
"Finding Your Voice" Preview
Living, Coping and Thriving with Illness
"Life in the Death Bed"
"Medical Mistakes" Panel
"The Other Side of the Curtain: Patient and Dr. G Get Real"
"Rap Session" Leader and participant
"The Permanent Me" (A One Woman Show)
"The Power of Kindness; Defining Good Medicine"
"Life in the Death Bed"
"Finding Your Voice" Preview
Sharing a book booth with Ana and Isa Stenzel
"Life in the Death Bed"
"Finding Your Voice" Preview
Online Chat with CF Teens
"Top 10 Things I Know Now After Having Double Doubles!"
"Advance Care Planning at a Glance" with James Brooks
"Healing vs. Curing" Panel with Dr. Mike McLeod
"Finding Your Voice as a Caring Professional"
Dr. Black has made "Sick Girl Speaks!" required reading for her nursing class!
What a great idea!
"I Am Not Illness: Finding the Way Back to Me" Dates & Time TBA
Patient Advocacy Workshops
Finding Your Voice: Advocating for Yourself or Someone Else,
Communicating with Health Care Providers--Part Three of Three Workshops
Finding Your Voic:e Communicating with Loved Ones Around Healthcare
Issues--Part Two of Three Workshops
Finding Your Voice: "Brass Tacks"--Part One of Three Workshops
Book Reading
A Patient Interview followed by Q & A
"Advance Care Planning: Communicating with Loved Ones about End of Life
Wishes"
Respecting Choices Instructor/Facilitator Certification
"Mortal Musings: Life in the Death Bed"
"Remember Me: Patient Advocacy and Quality Care"
"Finding Your Voice" Advocating for Yourself or Someone Else,
Communicating with Health Care Providers--Part Three of Three Workshops
"Finding Your Voice" Communicating with Loved Ones Around Healthcare
Issues--Part Two of Three Workshops
Finding Your Voice "Brass Tacks"--Part One of Three Workshops
"The Divine Healing of Dying"
Three Day Keynote Speaker and book signing
"10 Opportunities of Illness"
"Finding Your Voice as a Caring Professional and "The Art of Good Grieving"
(Two programs back to back)
"Advocacy In Action: Being a Self-Advocate"
Tiffany's Top 10 Tips and Tricks for Navigating the Medical Maze
"Navigating the Medical Maze: Advocacy and Empowerment
for the Modern Patient"
Talk for Nursing Students
Patient Advocacy and Living With Illness as a Child
Book Reading and Signing
Book Reading/Signing & Silent Auction for Project Compassion
"Finding Your Voice as a Caring Professional"